On their first date, Eiko Tiernan was told by her future husband, Laurier, that he has Marfan syndrome, a congenital hereditary disease that affects about 1 in 5,000 people. At first, she did not know how to react, as she knew nothing about the disease.
Four months later, having gradually learned about the syndrome, she decided to marry Laurier, as she wanted to be at his side throughout his battle with the disease.
Marfan syndrome is caused by a weakening of connective tissues and can occur in many parts of the body. A patient can suddenly suffer severe cardiovascular problems, including a ruptured aorta, unless they have regular examinations and appropriate treatment.
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